Iced Brain

It is Sunday afternoon and I am sitting on the sofa watching two of my lovely girls do my Zumba workout. They are having a great time, laughing and joking away with each other. I say MY Zumba workout but to be honest I have never even done it.  You see it was around the time that I ordered the entire kit that my symptoms all flared up and the most energetic thing I have done since then is start this blog.

I keep waiting to wake up symptom free, is that ever going to happen? I want to Zumba!

Today I have been on pain pills (the strongest over the counter ones available) trying to relieve some of the pressure in my head.  It feels like someone literally has my head in a vice grip. It is NOT nice.  I have never really been a person who gets a lot of headaches or migraines (in fact I don't think I have ever had a migraine from my experience of friends who suffer with them) and I would rather not start now thanks.

Last night the insomnia kicked in and when I got up to go to the bathroom I noticed a really strange (new) sensation in my head.  It was as though somebody had popped an ice cube into my brain.  Literally the left side (near the top) of my head had a feeling of being freezing cold and almost wet.  It felt weird and more than a little worrying.

When I saw my Neurologist last week he said that he "wasn't worried" about any of my symptoms although he understood that they were "bothersome" to me.

Bothersome?  BOTHERSOME?  Hey Doc, let me stick that pencil in your eyeball and then tell me if THAT is bothersome (sorry but I do get annoyed when how I feel is minimised by someone that should have more understanding)!!

So, once again I am back on the internet to see if the ice cube in my brain is something typical for MS sufferers and sure enough, the cold and wet sensation seems to be quite common.  I think my Google is going to start saying "Oh no, not you again" soon.

I have spoken to so many people who have felt like their Doctor didn't believe them or thought they were exaggerating.  It seems to be such a common theme.  I am almost at the point where I am not comfortable reporting any of these new symptoms or issues as I don't feel like he wants to hear about another "bothersome" issue.  I think that is quite sad really but it just seems to be the way it is.

I truly appreciate all of messages I have received from other MSers sharing their own experiences because it is a reminder that even though it feels like it sometimes, I am not alone in this nightmare journey.

I am determined that I WILL be doing Zumba soon. I just need my friend Caroline to finish the magic fairy dust that she promised me she is working on, which is really nice of her since I would never let her be "Sandy" when we did our version of Grease. I just hope that this new feeling in my head won't be a regular visitor.

So enough about me, how are YOU?