Tuesday, 13 March 2012

Let Light Shine Through

Good Morning Bleeps.

What a GLORIOUS day. I am such a great mood today. As I look outside I am looking at a cloudy sky but in my heart the sun is shining.

Why this wonderful mood you ask? It is because I am blessed with the most amazing people in my life. I remember writing (on one of my bad MS days) that I must have done something bad in a previous life to be suffering like I was but you know what? I take that back. Without this illness I would never have started this blog and as a result come into contact with the most amazing people.

Yesterday started out very well, my symptoms were almost non-existent, the sun was shining and I had some energy for a change. I was working happily way, published my blog and then all hell let loose. I guess some people recognised themselves in what I wrote and then posted very nasty accusations about me on a friend's wall (after she shared my blog on her Facebook timeline). I was accused of vile and disgusting things, all lies but boy did it hurt. I made what was written about me public on my own wall in case anybody else had heard these lies and had considered any of them to be true. The downside to "support" groups is that you can end up with mutual friends. I needed to make it clear that these were the rantings of a very unhappy individual and that there was no truth in them. That is all I will say about that part of the story as evil can only live if you feed it and this slanderous lie was evil.

I was thinking to myself then "enough", time to close off to the world, time to protect myself. I was done! As I got upset I started to get chest pains, dizzy, light-headed, my arms and legs started to tremble and I felt nauseas. Why bother blogging and sharing my life if it invites this in? Here I was feeling physically ill and yet I had done nothing wrong. It is true what they say about stress and MS not being a good mix because boy did my symptoms flare.

What happened next filled my heart with such love and reminded me WHY I do this. I got over 70 comments on the thread from my REAL friends offering me love and support, telling me how much my blog means to them, how much my friendship helps them on down days, how they didn't believe the lies and to hold my head high. Before long I was crying again but for a different reason. You know for every one awful person there are hundreds of GREAT people out there and I sure was remind of that yesterday.

I got Twitter messages from people telling me how they too had fallen victim to this sort of thing and had left Facebook as a result, how sad it that? I will be honest that I got friend requests yesterday that I thought about not accepting, how do you tell who are the wolves in sheep's clothing? How can you tell who is really there for you and on your side. I am the sort of person who just opens my life and my heart to people. That is quite a risk.

I told a family member that I am afraid to trust now, what if this happens again? She said "Not everyone will be kind but trust is earned. Thick skin is developed one layer at a time. Forge ahead and duck when those who throw barbs aim at you. That's the miracle of delete button! Have fun. You matter to a lot of people. Trust until the trust is broken. Then delete and move on."

So there you are, I am moving on. I am smiling and I feel so happy. Each message of support made my heart grow, I feel loved.

Last night my baby girl was in a school play, it was for her GCSE exams (for my international friends, this is an important "end of school life" exam here in England that is instrumental in helping you get into University/Colleges of your choice) and she was one of four girls in a scene that lasted 45 minutes. She played various characters and was SO amazingly brilliant, I couldn't stop smiling as I sat in the front row thinking to myself "wow, that is my baby up there". At 15 she is slowly turning into a beautiful young woman and I am so very proud of her. As she stood and delivered her monologue we made eye contact and my whole body was tingling, for once it wasn't MS, it was pure love and total pride. That girl of mine has massive talent, I see an Oscar in her future. It put my day into perspective, our loves ones, family and true friends are the people that really matter.

The same family member also reminded me of the Dr. Seuss quote, which is so true:

“Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.”

I am surrounded by love and people who really DO care. I am blessed. All of this positive energy has made me feel so GREAT today.

So enough about me, how are YOU?

21 comments:

  1. Favourite blog so far, crying too ! Asked my partner to read yesterdays. WellDone to your baby girl as well. Enjoy feeling good today lovely xx

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    1. Thank you Steph, as always you are such a sweetheart. <3

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  2. Good morning,

    I don't understand all this anger and spite that you often refer to. In all my time replying to blogs or message boards, I have never encountered it. Similarly, other MS sufferers with Blue Badges are always telling tales of car park altercations that they are always having. Never in my life have I been subjected to other peoples' anger. OK, I'm 6ft 5 and they might be afraid of challenging me but I'm hardly a fiersome chap although I do think that I give off an air of confidence that means that people are loathe to confront me.

    Perhaps you need to see the plank in your own eye. Do you do anything that might provoke their petty behaviour? Personally, I haven't seen it in your writing. Might I be missing something?

    Regards
    Jon

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    1. Thank you Jon,

      As soon as I see mean stuff in groups I don't comment or get involved. I dont DO confrontation. I am shocked if you are in any MS Facebook groups that you havent seen it as it seems to be rife. I have seen it on the MS Society Facebook pages even but again, I dont get involved. It is an observation.

      No, I dont believe that I do need to see any plank. This is the one and only time that it has been directed at me (again, my other writings if you read them again has just been my observation of how other people treat each other). The first (and only) time that I politely asked for the group that I started to NOT be about MS because frankly I am sick of the doom and gloom some days is when it all backlashed.

      Lesson learned for me - no more groups.

      Karen

      Thank you.

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  3. hi chuck,glad your feeling better its another blog to be enjoyed by the people that know you .hope you can put the recent unplesentnes behind you and gain strenth from the experiance ( bugger me im'e turning into a dislexic agony aunt ! ) just enjoy your day and dont let the buggers grind you down . ;-)x

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    1. I love my dislexic agony aunt (uncle??!!) Thank you Cliff, have a wonderful day my friend. x

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    2. yes its a good day ,suns out and im'e just going to sit in it with a pint on one side and my bid daft dog on the other and try to do the x.word.the little pleasures are the best!stay well . ;-)x

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  4. Jon I think you must be 'lucky' or perhaps do not share as much? I have had my illness for over 2 years and in the past 2 weeks experienced so much more hurt from 'speaking out' & 'asking for help', something I did not do before and that has attracted opinions, unhelpful and un-empathetic advice, lack of support & contact all of which has hurt and disappointed me beyond what I can put into words, simply as i always blamed myself for 'not asking, not explaining'- friends asked me to explain and tell more, so I did- to the point of saying the only way I can describe how HARD life with illness is, is that somedays I wish I were not here.. coming out of A&E and having phone calls, flowers, texts for 2 days and then *nothing* (from some)... and honestly I am not bitter or angry (okay a little angry) but it makes you realise that those who are there- even if seemingly new friendships, or ones over twitter and Facebook should be cherished and celebrated - which I think is what Karen is explaining through her experiences..

    Your 6ft 5 comment made me smile- my partner is 6ft 7 and very confident- I wonder :)

    Stephanie

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    1. Sorry that you have been hurt too my sweet girl.

      xx

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  5. Karen,

    I don't believe you have a 'plank' either, and can relate to what you are saying about the bitchiness in some groups and forums. I'm sorry that you've been subject to such petty spiteful behaviour on FB, if people don't have anything nice to say they should just keep their mouths shut.

    Grrrrrrr.

    Ell xx

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    1. If it were not 11 am I would drink to this :) xx

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    2. Thank you Ell, I appreciate that so much. It has only happened the once (thank god) but I am waaaaay too sensitive. I do belong to one Facebook group called MS Friends and none of this petty rubbish goes on. They were very supportive when I had my lumbar headache or when I asked them about my wine drinking.

      There are lots of threads about treatment and since I am not on any I dont really contribute but I have learned a LOT from people in there. It is honestly the one group where I have never seen people being mean to each other and so it is the only one where I feel "safe" now.

      Actually Stephanie it is after dinner somewhere so have a cheeky one for me ;) lol

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  6. Dear Karen,I want to thank you for being you.Your blog link was shared in a group I was in and through it I gained the courage to start moving myself out of the social isolation that I had gone into since MS cam into my life.
    I've started writing myself and once again I gained that courage from you,I was added to your group,and although didn't really speak much I was enjoying the "girlie" stuff that I didn't realize how much I was missing.
    I know you don't know me from a bar of soap but I wanted you to know that I will be eternally grateful to have "met" you and despite the difficulties you've had you have helped someone you don't even know.
    I felt it was important to let you know this and if you ever doubt yourself please remember there's a lady on the other side of the world who has started to reconnect with the world because of you.
    Thank you.
    I hope you remain symptom free and your life is full of love,joy and peace.

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    1. You just made me cry. They are good tears.

      I am sad but stronger as a result of what happened. When I hear things like this it reminds me why I share my life so openly and trust so quickly. I wont let one bad experience stop me from expressing myself.

      Thank you and much love to you.

      x

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  7. As a witness first hand to the ugliness that ensued for no apparent reason, I commend you. This Southern girl might not have been so polite about it. We all have our demons, at least on FB, we can delete and start over!!~xxxx<3

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    1. Thank you Jackie,

      You are such a sweet friend, I am so thankful that as a result of something so awful (ms) I met someone as kinds, caring and supportive as you. I know we will be life-long friends.

      xxx

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    2. Please excuse my typos, the black floaters in my eyes today are playing havoc with my sight!! xx

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  8. Glad you are still here XOXO Hope there were some words of wisdom in the msg I sent you

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    1. Thank you Brenda, you make up my sunshine today :)

      xx

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  9. :D glad you are feeling better proud mumma;)

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    1. Thanks Jude, I sure am :)

      Love to you

      xx

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