Good Morning Bleeps.
Yesterday I tweeted out to the universe asking who had turned my blood to iced water. This is a sensation that I get quite a lot recently, sometimes in my head (you may remember me talking about the ice cube in my brain) and often in my arms and legs. It literally feels as if my blood is running cold. I got tweeted back by a friend who said "oh bless you" to which I replied that I wasn't bothered by it, just taking it in my stride. He commented that I was "strong" (I don't think I am) but I let him in on the fact that I certainly have my days where I am full swing throwing a pity party for one (balloons and all) but yesterday wasn't going to be one of them.
I was still riding high (although hung over) from my great night in London and NO WAY was I going to let any symptoms get me down. The sun was shining and my mood was good. I have also started reading a book that was recommended to me by my lovely friend Lisa called The Secret, which basically applies the principle that whatever we put "out there" in the Universe is what you will get back. So for example if you are wearing a white dress and you constantly send out thoughts of "I bet I spill something on this white dress" you undoubtedly WILL spill something.
So with this in mind I decided that I would not send out any messages of "I hope I don't feel any worse" or "I wish these feelings would go away" and instead I would think of "I feel great, the sun is shining and today is a good day". Logically this would mean that the Universe should actually send me a good day. I think that is how it works, although I must confess that I am only on the first chapter and have a lot of reading to do yet.
We decided to have an early night (what is it about getting older that causes hangovers to last for days instead of hours?) and was in bed by nine. As I went to bed my vision was really squiffy. The black floaters in my eyes seemed to have decided to get friendly with each other and hold hands, creating a dark grey, cloud-like disturbance to my vision. Oh well, a good night sleep would sort that out.
We watched the TV show "Embarrassing Bodies" in bed and by "watch" I mean cower under the blankets while people showed their most intimate body issues on camera (I have never seen or heard of a Buried Penis before and hope to never again!). If you are not in the UK then you should YouTube the show, it is quite a "treat". Last week there was a woman who was putting a hosepipe up her bum and giving herself coffee enemas, who does that? Yikes!
I fell off to a lovely sleep shortly after ten and didn't wake up until seven. For a change I got a lovely nine full hours of slumber. You would think I would be on top of the world today, right? Wrong!
I have woken up this morning feeling awful. There is pressure in my head and my right eyeball feels like it is being squeezed from behind. I am so dizzy and feel nauseas. The numbness in my face is back along with tingling in my lips. My legs are heavy and full of iced water again. I also have the fog over my eyes and I am exhausted, as if I haven't rested for days.
Yesterday I tweeted out to the universe asking who had turned my blood to iced water. This is a sensation that I get quite a lot recently, sometimes in my head (you may remember me talking about the ice cube in my brain) and often in my arms and legs. It literally feels as if my blood is running cold. I got tweeted back by a friend who said "oh bless you" to which I replied that I wasn't bothered by it, just taking it in my stride. He commented that I was "strong" (I don't think I am) but I let him in on the fact that I certainly have my days where I am full swing throwing a pity party for one (balloons and all) but yesterday wasn't going to be one of them.
I was still riding high (although hung over) from my great night in London and NO WAY was I going to let any symptoms get me down. The sun was shining and my mood was good. I have also started reading a book that was recommended to me by my lovely friend Lisa called The Secret, which basically applies the principle that whatever we put "out there" in the Universe is what you will get back. So for example if you are wearing a white dress and you constantly send out thoughts of "I bet I spill something on this white dress" you undoubtedly WILL spill something.
So with this in mind I decided that I would not send out any messages of "I hope I don't feel any worse" or "I wish these feelings would go away" and instead I would think of "I feel great, the sun is shining and today is a good day". Logically this would mean that the Universe should actually send me a good day. I think that is how it works, although I must confess that I am only on the first chapter and have a lot of reading to do yet.
We decided to have an early night (what is it about getting older that causes hangovers to last for days instead of hours?) and was in bed by nine. As I went to bed my vision was really squiffy. The black floaters in my eyes seemed to have decided to get friendly with each other and hold hands, creating a dark grey, cloud-like disturbance to my vision. Oh well, a good night sleep would sort that out.
We watched the TV show "Embarrassing Bodies" in bed and by "watch" I mean cower under the blankets while people showed their most intimate body issues on camera (I have never seen or heard of a Buried Penis before and hope to never again!). If you are not in the UK then you should YouTube the show, it is quite a "treat". Last week there was a woman who was putting a hosepipe up her bum and giving herself coffee enemas, who does that? Yikes!
I fell off to a lovely sleep shortly after ten and didn't wake up until seven. For a change I got a lovely nine full hours of slumber. You would think I would be on top of the world today, right? Wrong!
I have woken up this morning feeling awful. There is pressure in my head and my right eyeball feels like it is being squeezed from behind. I am so dizzy and feel nauseas. The numbness in my face is back along with tingling in my lips. My legs are heavy and full of iced water again. I also have the fog over my eyes and I am exhausted, as if I haven't rested for days.
I am really trying to not let this get me down today. I am sending the Universe a very important message today of "I have work to do and so I feel great". Hopefully the Universe will send me the ACTUAL feeling of "great" back to me. While I am at it I wonder if I sit and think of how wealthy I am, will I win the lottery? I think I need to chat to my friend Lisa and find out how this works.
I really do think that your frame of mind can determine what sort of day you have but it is really hard when you feel like crap to feel positive. I told Phil the other day that I don't think my symptoms bother me any more, that I am an observer of them but they will no longer make me sad. I said that maybe finally I had "let it go" and reached the acceptance stage of living with a chronic illness. Today I am not so sure, today I am feeling fed up that even though I had a great night sleep, I feel worse today than I did yesterday. Maybe my body is just rebelling because I gave it a good pasting with alcohol on Sunday but is that what is going to happen now? A good night = pay for it later? That sort of sucks to be honest.
I think I need to read some more of this book because although I haven't slipped completely back into the pity party today, I am sort of standing at the back door, holding a balloon and am tempted to go in. I simply do not have time for it today however as I have websites to work on. I have to keep the positive energy flowing.
So enough about me, how are YOU?

I think I'm explaining this properly, but alcohol will clear symptoms up to a certain point with no effect later. I think it's because of the depressed brain activity keeping the body from overloading the brain. If you have too much though, I've read that it can clear the symptoms but bring them back worse the following day. That means a hangover plus worse MS symptoms which makes it feel like it takes forever to get over.
ReplyDeleteI had this happen to me once so far and I feel for you because it wasn't fun at all. Hopefully you can get through it quickly and it won't put a rain cloud in your sunny day.
As for me, I've had seven hours of sleep for the past three nights and counting and have felt pretty good for the first time in a month, so I'm not too bad, all things considered. Hope the rest of today and tomorrow are great for you. :)
Thank you :)
DeleteYes, I think yesterday was my "normal" hangover and today is my "ms" hangover. It's OK and I would do it all again in a heartbeat, totally worth paying the price.
So glad you're sleeping well and are feeling good - I hope it continues.
xx
Morning Karen
ReplyDeleteI too feel great !!!! I am really trying to stay positive despite the wretched dodgy leg. I know exactly what you mean when you talk about " freezing a areas" in the body, they come nearly as often as the " burning " sensations.
I was so pleased to hear about the good time that you had in London & good for you that you were able to put your symptoms " on hold " & have a few too many drinks maybe, but enjoy life & have fun again. I laughed so much about you watching " embarrassing bodies " cowering under blankets as unmentionable parts of the body were aired.
I am sending you a " Good Day "
Lots of hugs
Sheila Rogers
Hi Sheila,
DeleteYes, I get that too. I feel like my blood is ice and my skin is on fire are the same time. CRAZY!
That show freaks me out but I still watch it. Phil is usually covering his eyes saying "tell me when its over" LOL
Lots of love my friend.
xxxxx
Hi Karen, when I read your blog I get a smile on my face.You definately have a way with words.Glad that you enjoy your night out in London.We can't wait to get to England in May.Only 49 days left then I can see my son,Wayne,and daughter-inlaw,Kirstie,again.From myside I am sending you only positive thoughts and hope you will feel better in no time.Enjoy the rest of your day.Naomi Landman
ReplyDeleteThank you Naomi,
DeleteYour Daughter-in-law is a total inspiration to me. She is a beautiful person inside and out and from what she has told me about your son, he is an amazing man too! I bet you are counting the days until you visit - I hope you have a lovely time. Lots of love to you. xxx
Hi Karen,
ReplyDeleteI was really bad over the Christmas period MS wise and it took me until February to realise that it was because of my love of more than one glass of wine!!! Since then I limit myself to a glass of wine at the weekend (very boring, I know) but the run over by a bus feeling has disappeared for a while.
Probably not what you want to hear though :( on a more positive note, I also started vitamin D and primrose oil, so perhaps its the combination...who knows, I am as new to this as you xx
Hi Cerys,
DeleteIt is a double edged sword, the wine takes away the tingles etc but then I pay the next day. I have cut down a lot now though, it does help even if it is to sleep better!
Vitamin D is good, also B12. My B12 was normal at 332 but I read that anything under 500 should be topped up.
Its all a learning curve eh?
xxx
Oooh B12, will look into it... I have my 4 monthly appointment with my consultant soon so on countdown for that, and yes all a learning curve. Some good, some bad, although the hardest thing has been accepting the unknown.
DeleteLove your blog, and enjoy reading it xxx
when is the book coming out karen, i would buy it, but you would have to an audio book as well for us people with blurred eyesites.lol.good blog yet again .xxx
ReplyDeleteAwww thanks my friend, maybe one day eh? That would solve a lot of my problems :) xx
DeleteI have nothing witty to add or say, just love ~ love ~ love your blog. I've had MS for 11 years ... I get it, get it, get it. Hope the Universe listens to you today : ).
ReplyDeleteHey funny girl,
ReplyDeleteI haven't been around for a little bit but great to be back to some classic Miss S pot. Oh, that embarrassing bodies title is so spot on. I remember the only episode we consciously watched depicted a lady in her 60 showing us her prolapsed bottom. I'm not sure if a coffee enema trumphs a prolapsed bottom but both are yikety yikes territory.
So good to hear you are entering acceptance. Peace,love, joy to you.
Blessings
Alex